You're about to make a difference!

100% of online donations go towards supporting children with Epidermolysis Bullosa (EB).

I prefer to donate once.

The SOS EB Kids Corp. is recognized as tax-exempt under section 501(c)(3) of the Internal Revenue Code. EIN: 47-4973411. Your contribution is tax-deductible.

Due to the COVID-19 pandemic, the amount of health supplies we send to treat our children has decreased dramatically.

Itch relief lotions, antiseptic solutions, ointments, special dressings (silicone foam, polymeric membranes, lipido-colloid matrix), retention nets and dietary supplements are some of the essential elements in the daily life of a child with EB. They help control wounds, reducing the pain caused by them and improving the child's general health.

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What is EB?

Epidermolysis bullosa (EB) is a rare and serious genetic illness, for which no cure has been found and it is characterized by acute sensitivity in the skin and mucosal membranes.

 
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How is it to live with EB?

EB patients live with pain every day. A simple touch or pressure on the skin or even just climatic changes can cause injuries, both external and internal. 

People with EB are lovingly called "butterflies", a reference to their fragile skin like the wings of a butterfly.

I prefer to donate once.

Why do we need your help?

We need your help to improve the quality of life of the 70 Brazilian children assisted by our organization. People with Epidermolysis Bullosa in Brazil face great neglect by the public authorities and enormous prejudice in society. Our mission goes far beyond sending them health supplies, we also fight for DIGNITY and RESPECT. 

Embrace this mission of love with us!

 

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$50 donation

Provides 2 Mepilex Transfer Dressings

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$100 donation

Provides 2 Mepilex Transfer Dressings, 1 Retention Net for arms, 1 Retention Net for legs, 1 Cetaphil, and 1 Duoderm Hydrogel

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$250 donation

Provides 5 Mepilex Transfer Dressings, 1 Retention Net for arms, 1 Retention Net for legs, 1 Retention Net for the torso, 1 Cetaphil and 1 Duoderm, 2 Cavilon, 1 Sensicare, and 1 Aquaphor

 

Ready to make a positive impact?

I prefer to donate once.
Stories
Eliane e Alice

SOS EB Kids Stories

Meet Eliene, Alice’s mom

“SOS EB Kids is a light when we are in darkness. They are who we turn to when we don't know what else to do to ease my Alice's suffering. It is very gratifying to know that there are people willing to help. My whole family is grateful to SOS EB Kids.”

Alice is a child with EB.

Christiane Brasileiro

SOS EB Kids Stories

Meet Christiane Brasileiro

“I founded SOS EB Kids in 2014 when I came across a video of a child with Epidermolysis Bullosa. I was surprised by the severity of the illness and swore that I would do something about it. I started by spreading awareness through my circle of friends and then mobilizing people to promote awareness and fundraising. Through donations, we can improve the quality of life of children with EB and, at the same time, provide emotional support for their families. Currently, we assist 70 children with EB across Brazil.”

Christiane is the President Founder of SOS EB Kids.

Ebe Becker

SOS EB Kids Stories

Meet Ebe Becker

“I have experienced the opportunity to be an SOS EB Kids donor for several years now. It is an immense, fantastic, and indescribable privilege to be able to help them. I really want to spread this to the world and thank all for this amazing and essential project.”

Ebe is a recurring donor.

Cristiany e Agatha

SOS EB Kids Stories

Meet Cristiany and Agatha.

“Only those who have a butterfly at home know about our daily struggle and how much we value good and painless moments. For this reason, I am so grateful to SOS EB KIDS for providing us with these moments and giving us support for a better quality of life for my granddaughter Ágatha. You are so important in our lives. Grateful for the great help!”

Cristiany is Ágatha’s grandmother, Ágatha is a child with EB.

Silvia D’Avila

SOS EB Kids Stories

Meet Silvia D’Avila

“I have personally taken this cause into my heart and have used my abilities as a jewelry designer to create the awareness bracelets. These bracelets help not only to raise funds to keep supporting the butterflies but also to bring awareness to this disease that not only affects these children but also their families, which are usually underprivileged families that otherwise would not be able to give them this quality of life. Only when you walk in someone's shoes can you understand what a little donation does for someone feeling hopeless.”

Silvia is a donor and awareness supporter.

Denise Marla

Stories of SOS EB Kids

Meet Denise Marla

“When a mother says that a simple act, such as bathing, is the most difficult time of the day, it makes me reflect. I take a deep breath and try to find a word of comfort to share with a parent in the midst of so much pain. Is there greater suffering than seeing your own child suffer? Children with EB are fragile like butterflies, but have the strong spirit of lions! We are here to be anchors for each other. Thank you SOS EB KIDS, it is in giving that we receive!”

Denise Marla is a “godmother” at SOS EB Kids.

Fernanda Nunes

Stories of SOS EB Kids

Meet Fernanda Nunes

“I am a volunteer doctor at SOS EB Kids. It is stories of resilience and strength that makes me very grateful for the opportunity to offer a little of what I know to help ease the suffering of my patients with EB. I’m very proud to be a part of this family.”

Fernanda Nunes is a volunteer doctor.

Reaching the fundraising goal will be essential to expand the services of SOS EB KIDS and serve even more children with Epidermolysis Bullosa.

Help us reach our goal so we can help these families and more.
For other ways to support, please send us an email.